Wednesday, February 9, 2011

Still on IV's

I went to the doctor's the other day and of course not much has changed. She said that I am definitely heading in the right direction and that my lungs sound much better now than when I was in the ICU two weeks ago, but they are still not great. Let's face it, that much I knew. I feel horrible still. For a few days I was able to sit at rest without oxygen but all of a sudden I need it 24/7 again. I am so exhausted I find myself sleeping whenever I get a chance, which isn't often with the medication schedule I am on. My weight has fallen again to 97 pounds which isn't horrible - but right before this hospitalization I was actually up to 110! I was able to wear all of my old jeans and it felt amazing. After my hospitalization in July/August I had slipped down to 88 pounds and was wearing a size 12 from the little girls store Justice. I am going back to the doctor again on monday and we will do a PFT, XRAY and decide whether or not to stay on IV's. If I continue, I will most likely look into going on short term disability for work, which is the last thing in the world I want to do. However, I know that I really need to just think of myself and put my health above everything else. I know what I need to do, it's just so hard when the majority of your life CF never interfered and now that's all it seems like it's doing. Well that's it for now, I am going to try and get some sleep. Good night all!

1 comment:

Stacey said...

Thanks so much for the blog love,Katy! I am so sorry you're still feeling lousy :-( I was in a similar situation as you, in that CF didn't impact what I could and couldn't get done for about 34 years. Last year I cultured mycobacterium abscessus and MAC, which resulted in 4 months of IV's and over a year of antibiotic treatment. I worked full time, but realized that I needed to devote all of my attention to my health in this moment in time. It was a really hard decision. I didn't want to admit that my health was bad enough that I couldn't work. I ended up taking off for 4 months and looking was an amazing gift that I gave myself. Hopefully, you will feel better by Monday and not even be faced with this decision. I just wanted you to know that I can relate... Lots of love to you!