Still on IV's

I went to the doctor's the other day and of course not much has changed. She said that I am definitely heading in the right direction and that my lungs sound much better now than when I was in the ICU two weeks ago, but they are still not great. Let's face it, that much I knew. I feel horrible still. For a few days I was able to sit at rest without oxygen but all of a sudden I need it 24/7 again. I am so exhausted I find myself sleeping whenever I get a chance, which isn't often with the medication schedule I am on. My weight has fallen again to 97 pounds which isn't horrible - but right before this hospitalization I was actually up to 110! I was able to wear all of my old jeans and it felt amazing. After my hospitalization in July/August I had slipped down to 88 pounds and was wearing a size 12 from the little girls store Justice. I am going back to the doctor again on monday and we will do a PFT, XRAY and decide whether or not to stay on IV's. If I continue, I will most likely look into going on short term disability for work, which is the last thing in the world I want to do. However, I know that I really need to just think of myself and put my health above everything else. I know what I need to do, it's just so hard when the majority of your life CF never interfered and now that's all it seems like it's doing. Well that's it for now, I am going to try and get some sleep. Good night all!