I have a job finally! My DREAM job!! I am back in nursing and working at a hospital 10 minutes from my house. I am working in the Neonatal Intensive Care Unit (NICU). I ABSOLUTELY love it!!! I can see myself in this area for the rest of my career. If my health remains stable, I am actually thinking about going back to school in a few years to become a neonatal nurse practitioner!
Since February I have been taking a new study drug, Vertex 770. This pill taken twice a day is supposed to work at the cellular level, fixing the main defect in CF - causing symptons to disappear! I'm not sure whether I am on the real thing or the placebo. A month into taking the pill I wasn't feeling any changes and actually felt quite sick. My doctor started me on another round of IV antibiotics. Since then, I have been feeling MUCH better. It could be that the Vertex just took a little longer to take effect in my system, the IVs are whats done the trick, or possibly a combination of the two things helping each other out. Either way, I hope that I stay feeling the way I am feeling now for a LONG time!
Working full time again is definitely wearing me out - but I don't mind! When you are out of work for over a year because you were so sick that you just couldn't - working again is a blessing! I am exhausteddd, especially being on IV's right now. I wake up at 4:30 every morning to make sure that I have ample time to shower and get all of my meds and therapy done. When I get home, I still have two doses of meds to go - but knowing that I LOVE where I am working makes it bearable. As tired as I am waking up at the crack of dawn, I cannot wait to get into work and take care of adorable, innocent babies. Something about seeing what they go through (even though I go through enough of my own stuff), just makes the crap I deal with on an everyday basis, seem less important and not so bad.
This year I redid my youtube video for the CF walk. I am hoping that this year is another huge success! I really feel that with all of the new drugs out on the market now for people with CF, that things are going to be okay. I can't wait to turn 26 and then have a million more birthdays after that!!