Update ..

I haven't blogged in quite a while. I don't know why I just can't seem to commit to keeping up with posts. I am not working at all anymore. Except for pulmonary rehab three times a week, I literally have NO schedule. I have been trying to keep as busy as possible though. My friend Lyndsey lent me a portable oxygen concentrator which has enabled me to stay out longer and even sleep out if I want to! Last week I went to Nancy's new house in long island and slept there instead of driving home late at night. Joey and I are even going on "vacation" to the city this week! We wanted to get away before transplant, but being that I am close to the top of the list and that even if we went to the Jersey Shore or the Hamptons, we could get stuck in hours of traffic if I happened to get the call for lungs while away. We actually have a gift certificate to a steakhouse and our friend Toni Ann bought us tickets to see Rock of Ages, so we are going to get a hotel room and have a NYC vacation! It will be nice to just get away for the night and spend some time with Joey! We don't get a lot of alone time and it SUCKS!